THE NATIONAL PENSIONERS CONVENTION (NPC) WERE REPRESENTED BY DOT GIBSON, GENERAL SECRETARY, PAT HEALY & PAT PRENDERGAST, VICE PRESIDENTS.
"DIGNITY CODE"
Paul Burstow said that he had no problem whatsoever with the NPC Dignity Code but his adviser's had two queries, and he asked for clarification on the first and last points after the words "calls for" in the Code.
- "Respect for individuals to make up their own minds, and for their personal wishes as expressed in 'living wills', for implementation when they can no longer express themselves clearly." We explained that this means exactly what it says and should not be confused with the "right to die" on which the NPC has no policy.
- "The provision of advocacy services where appropriate". We said that an individuals family should be made properly aware that they are also their relatives advocate, with the right to check for themselves their relatives treatment, medication, proposed changes in the type of care they receive and where this will be given; where there is no relative an advocacy service should be provided. (Pat P pointed out that when she tells relatives that they have this right, they often say that they do not want people to think that they are after their relatives money and so it is really important for the care setting to have a representative to ensure that this is properly explained and carried out).
Paul Burstow said that he was satisfied with those answers. He could now take action and would write to us in the new year to say how support would be given to us to take the Dignity Code forward. We said that it was our view that whether a health/care provider was a public or a private concern they should sign up to the Dignity Code and that we would be inviting health and care experts ( we have a meeting with the RCN in January and will raise it with the CQC). Pat H reported that the Kensington and Chelsea Borough Council had unanimously adopted the Dignity Code. We asked for it to be on the agenda of the next UK Advisory Forum on Ageing meeting; he agreed to do this.
"White Paper"
Paul Barstow said that the White Paper will be presented in the spring, with the following sections.
- The Government's response to the Law Commission's report on Adult Social Care, May 2011;
- Quality and workforce (standards and training);
- Provider failure (Southern Cross);
- Overseeing the market (80% in the private sector);
- Financial Services;
- Integration of services, the NHS and also housing.
At the same time there will be a separate Progress Report on Funding Reform (Dilnot).
There was a general discussion during which we asked why the Dilnot report was being dealt with separately and were told that the Government could make legislation in various ways - not necessarily through a White Paper; we also raised the problem of the division between "Medical" and "Personal" care, especially in relation to dementia and the recent Equality and Human Rights Commission on care. We suggested that Baroness Sally Greengross should be asked to speak on this report at the next meeting of the UK Advisory Forum on Ageing. (She is a member of the EHRC). Paul Barstow agreed to put this on the agenda.
"Blackpool Pensioners Parliament"
We asked him to speak and field questions at the Pensioner's Parliament on 20th June 2012; he was positive about this and said that he would do his best to sort out his commitments so that he is able to do so.
